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Author´s name

García-Bravo, C., Palacios-Ceña, D., García-Bravo, S., Pérez-Corrales, J., Pérez-de-Heredia-Torres, M., y Martínez-Piédrola, R.M.

Article title in Spanish

Retos sociales y familiares de tener un hijo diagnosticado del síndrome de Phelan-McDermid: Un estudio cualitativo de las experiencias de los padres

Article title in English

Social and Family Challenges of Having a Child Diagnosed with Phelan-McDermid Syndrome: A Qualitative Study of Parents’ Experiences. International Journal of Environmental Research and Public Health.

Name of journal

International Journal of Environmental Research and Public Health

Year of publication

2022

Volume of the journal

Pages of the journal

Keywords

Síndrome de Phelan McDermid/Phelan-McDermid syndrome, Enfermedades raras/rare diseases, Padres/parents, Estudio cualitativo/ qualitative research, Entorno social/social environment, y Apoyo social/social support

DOI

10.3390/ijerph191710524

Summary in Spanish

Summary in English

Bibliographic reference


Return List

Contact Author

Open URL Article

Author´s name

García-Bravo, C., Palacios-Ceña, D., García-Bravo, S., Pérez-Corrales, J., Pérez-de-Heredia-Torres, M., y Martínez-Piédrola, R.M.

Article title in Spanish

Retos sociales y familiares de tener un hijo diagnosticado del síndrome de Phelan-McDermid: Un estudio cualitativo de las experiencias de los padres

Article title in English

Social and Family Challenges of Having a Child Diagnosed with Phelan-McDermid Syndrome: A Qualitative Study of Parents’ Experiences. International Journal of Environmental Research and Public Health.

Name of journal

International Journal of Environmental Research and Public Health

Year of publication

2022

Volume of the journal

Pages of the journal

Keywords

Síndrome de Phelan McDermid/Phelan-McDermid syndrome, Enfermedades raras/rare diseases, Padres/parents, Estudio cualitativo/ qualitative research, Entorno social/social environment, y Apoyo social/social support

DOI

10.3390/ijerph191710524

Summary in Spanish

Summary in English

Bibliographic reference


Return List

Contact Author

Open URL Article

Author´s name

García-Bravo, C., Palacios-Ceña, D., García-Bravo, S., Pérez-Corrales, J., Pérez-de-Heredia-Torres, M., y Martínez-Piédrola, R.M.

Article title in Spanish

Retos sociales y familiares de tener un hijo diagnosticado del síndrome de Phelan-McDermid: Un estudio cualitativo de las experiencias de los padres

Article title in English

Social and Family Challenges of Having a Child Diagnosed with Phelan-McDermid Syndrome: A Qualitative Study of Parents’ Experiences. International Journal of Environmental Research and Public Health.

Name of journal

International Journal of Environmental Research and Public Health

Year of publication

2022

Volume of the journal

Pages of the journal

Keywords

Síndrome de Phelan McDermid/Phelan-McDermid syndrome, Enfermedades raras/rare diseases, Padres/parents, Estudio cualitativo/ qualitative research, Entorno social/social environment, y Apoyo social/social support

DOI

10.3390/ijerph191710524

Summary in Spanish

Summary in English

Bibliographic reference